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Weston woman to take part in Chiari Malformation Walk Across America PDF Print E-mail
Written by PETER KUEBECK Sentinel Staff Writer   
Thursday, 19 September 2013 11:35
Tammy Trumbull, Chiari Malformation sufferer who is taking part in a walk for the disease later this month, is seen at her home in Weston. (Photo: J.D. Pooley/Sentinel-Tribune)
WESTON - One village woman will be among those taking part in the upcoming Conquer Chiari Walk Across America later this month in support of research for Chiari Malformation, a neurological disorder that can cause a number of painful symptoms.
"There've been a lot of people that have passed away from it, because they were misdiagnosed," said Tammy Trumbull, Weston, who suffers from the disease herself. "A lot of doctors don't know anything about it."
Chiari Malformation is a disorder in which the bottom part of the brain, the cerebellum, moves out of the skull and crowds the spinal cord, pressuring the spine and brain.
It can cause severe headaches, extreme neck and shoulder pain, difficult swallowing a speaking, respiratory and sleep issues, numbness, and a number of other symptoms. There is no cure.
Trumbull was diagnosed in early 2008 and had brain surgery that spring.
"I got to the point where I lost the use of my left side. I was basically in a wheelchair. Then, once they did the surgery, it opened up the spinal fluid and I was able to get the feeling and the use back in my left arm and left leg. I don't have 100 percent because of some of the nerve damage that was done."
"There are a lot of people in Wood County that do have it," said Trumbull. "I have a lot of friends that have it. It's been diagnosed more than breast cancer or MS, and it mimics MS."
Trumbull will be taking part in one of the CCWAA walks on Saturday - to be held in Toledo - and has taken part in the walks the past three years. A second walk in Ohio is being held in Beaver Creek.
The CCWAA holds two walks in each state each year. A portion of the monies raised go to benefit the Conquer Chiari research center on the campus of the University of Akron.

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